Founded in 1959, we have been leading the fight against muscle-wasting conditions since then.
We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK.
- We support high-quality research to find effective treatments and cures and won’t stop until we have found them for all muscle-wasting conditions
- We are leading the drive to get faster access to emerging treatment for families in the UK
- We ensure everyone has the specialist NHS care and support they need – the right help at the right time, wherever they live.
- We provide a range of services and resources to help people live as independently as possible.