We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.
About Us
What we do
We share expert advice and support people to live well now.
We fund groundbreaking research to understand the different conditions better and lead us to new treatments.
We work with the NHS towards universal access to specialist healthcare.
Together, we campaign for people’s rights, better understanding, accessibility, and access to treatments.
Our mission
Our values
Stronger together
We believe in the power of community. That the whole is greater than the sum of its parts. Because the more of us who come together, the greater the impact we’ll make. We inspire collaboration across our whole community. Staff and volunteers. Scientists and supporters. Friends and family. Healthcare professionals, other charities, and our corporate partners. We champion Equality, Diversity and Inclusion. Through the way we work and inclusive engagement with the whole community.
Forward thinking
There are over 60 different muscle wasting and weakening conditions. That’s more than 110,000 unique individuals. Plus all the people around us. We’re here for every single one. Whoever you are. Wherever you’re from. You are our sole focus. We set ourselves clear targets and measure our impact. We don’t mince our words. We say what we think.
Here for you
We believe in the power of kindness. We are here for everyone, but we know support isn’t one-size-fits-all. We take the time to listen to every individual, so we can tailor our support to you. We are all about the people who make up our community. The people living with muscle wasting and weakening conditions and those around us. Our friends and family, healthcare professionals and scientists. We share real life stories at every opportunity. Human authenticity. Real words. Real images.
Never Stop
We’ve already made advances that would have been unthinkable just 10 years ago, and we are determined to go even further and faster. We’re here for each other. At every stage of life. We advocate on behalf of our community by amplifying our voices. Raising awareness of the challenges we face and how we’ll overcome them. We have momentum and we’re going places. Every day counts.
Our strategy
Our organisational strategy for 2023-2025 highlights key achievements and outlines our future direction, focusing on:
- Research and campaigning highlights from the past decade.
- Our work with NHS professionals.
- How we work with our community to shape our priorities and strategies.
- Our vision and objectives for future research funding.
- Our vision and objectives to improve health and social care services.
- How we plan to help people live well with a muscle wasting condition and our objectives to do so.
- How we plan to raise money for better lives.
Our impact
Our annual reports highlight the impact of our work. From groundbreaking research to lifechanging support, see how we’re changing the future of muscle wasting and weakening conditions. Dive into our journey from April 1 to March 31 each year and see the power of your fundraising in action.
Connect with us
Contact us
We’re here for you. We’re here for everyone living with a muscle wasting condition and the people around them. Speak to us for advice, research information, fundraising and donation help.
Work for us
We offer hybrid, flexible employment opportunities across the UK. Join us, together we can change the future of muscle wasting conditions.
News updates
Givinostat – our role in supporting access to new treatments
May 2, 2025
Building a legacy: Over £8 million raised by property sector fundraising event
May 2, 2025
Our auction for London’s hottest ticket: You Me Bum Bum Train
April 16, 2025