LGMD1B is an autosomal dominant form of limb girdle muscular dystrophy (LGMD). The age of onset of muscle weakness is variable; the most common presentation is before 20 years, however some people may present with symptoms when they are older.
Life expectancy depends upon the identification and treatment of the associated involvement of the heart and the breathing muscles.

Download your alert card
Alert cards are conveniently shaped to fit inside a wallet and outline key recommendations and precautions that a non-specialist clinician would need to know during a time of worsening health.