The age of onset of muscle weakness is extremely variable, the most common being between 10 and 20 years of age. It can also range between two and 40 years.
Life expectancy and quality of life depend upon the identification and treatment of the associated complications such as heart and breathing problems.
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Alert cards are conveniently shaped to fit inside a wallet and outline key recommendations and precautions that a non-specialist clinician would need to know during a time of worsening health.