Our family funds

Hero has Duchenne Muscular Dystrophy (DMD), a muscle wasting genetic condition that is going to seriously affect his life. We are raising money to help science find a way to improve his life, and that of other people with DMD.

When Thomas was a baby he was slower at doing things, like sitting up on his own, walking, getting up from the floor. As a parent you worry but you also just say to yourself he's just doing it his own way.

Following the devastating diagnosis of Duchenne muscular dystrophy when their son Dominic was just four years old, Nikita and Dan set up Dominic’s Sunshine Trust.

Our son, Eben, was born in December 2018. After two and a half years of medical investigation, we were finally given a diagnosis of Ullrich Congenital Muscular Dystrophy.

Our daughter Josie was born in April 2017. When she was 2 years old, we started medical investigations which, over 2 years later, lead to her formal diagnosis of Ullrich Congenital Muscular Dystrophy in July 2021.

The purpose of this campaign is to raise funds for treatments and that vital cure. Also to raise awareness of muscle wasting conditions. We also want to think of his future and help raise funds for equipment that Sammy may require as he gets older and his needs change. Also to help him be more independent and reach his full potential.

Roarsome Rory’s Raisers was set up by Mum Kerry Bentley for her son Rory. Rory was diagnosed with Becker muscular dystrophy in August 2020 and since then Kerry has thrown herself into fundraising and becoming one of MDUK’s Family Funds was the obvious next step.