Our family funds

Willow Rose was diagnosed with congenital muscular dystrophy when she was just a few weeks old. Her mum and dad, Jaclyn and Mark, from Davyhulme in Manchester, are determined to raise as much money as possible to fund research into the condition so other parents may not have to hear the same news in the future.

LoveforLouis is a Family Fund set up by Sam and Sarah Jackson for their son, Louis, who has Becker muscular dystrophy.

Hi, I’m and I’m fundraising for aiding the research and development into FSHD treatments and expansion of our knowledge into the condition. What is FSHD? Don’t worry I had no clue about it before my diagnosis either. Alexandra

Carmela is a very happy, bright and funny little girl with a zest for life but she struggles with daily obstacles. She has L-CMD, a progressive muscle-wasting condition which unfortunately will affect her heart and lungs.

Ella who is 17 was diagnosed aged 4 as a Manifesting Carrier of Duchenne muscular dystrophy, a progressive muscle-wasting condition which currently has no cure

Joanne and Pedro Fernandes’ son, Luca, has Duchenne muscular dystrophy. They set up Team Luca to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

Meet Michael, Lindsey, Finlay and Georgie Armstrong from Edinburgh!