Our family funds

Carmela is a very happy, bright and funny little girl with a zest for life but she struggles with daily obstacles. She has L-CMD, a progressive muscle-wasting condition which unfortunately will affect her heart and lungs.

Joanne and Pedro Fernandes’ son, Luca, has Duchenne muscular dystrophy. They set up Team Luca to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

Michael and Donna Thirkettle’s son Jed was diagnosed with Ullrich congenital muscular dystrophy when he was eight years old. They set up Team Jed, to raise awareness and funds for Muscular Dystrophy UK’s Ullrich CMD Appeal and have raised an incredible £200,000 so far. Now a young adult, Jed is keen for his story to inspire others.

Alison and Matthew Kay’s son Bertie, who lives in Southport with his brother Archie and sister Emmeline, was diagnosed with Ullrich Congenital muscular dystrophy in 2014, aged two years old.

Lilian and George Pegg have set up George’s Journey, a family fund for their son George, who has Duchenne muscular dystrophy.