We are working on updating our information, and some pages on our website have been taken down temporarily.
If you need information or support on this topic, please speak to your GP, community health services, or specialist neuromuscular team. You can email us at firstname.lastname@example.org, or call our free helpline on 0800 652 6352. Our helpline is open from Monday to Thursday, 10am to 2pm. If the team are unable to assist with your query, they will do their best to signpost you.