Support and guidance for those who are parents of someone with a muscle-wasting condition is on offer.
"Soon after our son’s diagnosis, I met someone from the charity who put me in touch with another family in the same situation. It was really helpful to talk – we didn’t feel alone. Often friends and family just don’t understand." - Susan, whose son has Duchenne muscular dystrophy
Want to talk to another mum or dad, who understands what you’re going through? We have a number of ways we can put you in touch with other parents. You can:
- contact our Care and Support Team on firstname.lastname@example.org
- call our Freephone helpline on 08006526352.
- join our Parents Support Group on Facebook here