They also offer advice and information, supporting physical and emotional well being through regular clinics, and educating other health professionals.
Their training backgrounds include nursing, social care, physiotherapy and occupational therapy. They work with statutory service providers, education authorities and other professionals to advise, support and best meet the needs of people with muscular dystrophy and related neuromuscular conditions.
In order to have ongoing support from a regional care advisor, you will usually need to be referred by your GP to the clinic that the regional care advisor supports.
Derby
Alison Cami – Neuromuscular Care Advisor for paediatric and adult clients who attend University Hospitals of Derby and Burton.
Florence Nightingale Community Hospital, London Road, Derby, DE1 2QY
- E-mail: alison.cami@nhs.net
- Tel: 01332 258238
Dorset
Kathryn Docherty – Part time Neuromuscular Care Advisor for paediatric and adult clients.
Poole Hospital, Dorset, BH15 2JB
- E-mail: kathryn.docherty@poole.nhs.uk
- Tel: 0300 019 3273
East of England
Liz Joyner - Adult Neuromuscular Care Advisor covering Norfolk and Suffolk
Addenbrookes Hospital, Hills Road, Cambridge, CB2 0QQ
- E-mail: add-tr.eoe.nm@nhs.net
- Tel: 01223 349815
- Working days: Mondays, Tuesdays, Wednesdays
Carol Wood – Paediatric and Adult Neuromuscular Care Advisor covering Cambridgeshire and Essex, based in Cambridge.
Addenbrookes Hospital, Hills Road, Cambridge, CB2 0QQ
- E-mail: add-tr.eoe.nm@nhs.net
- Tel: 01223 349815
Andy Rose – Adult and paediatric Neuromuscular Care Advisor covering Hertfordshire, Bedfordshire and Peterborough.
Addenbrookes Hospital, Hills Road, Cambridge, CB2 0QQ.
- E-mail: add-tr.eoe.nm@nhs.net
- Tel: 01223 349815
Katrina Cousins – Paediatric Specialist Nurse based at Addenbrooks hospital, Cambridge.
Addenbrookes Hospital, Hills Road, Cambridge, CB2 0QQ.
- E-mail: katrina.cousins2@nhs.net
- Tel: 01223 216662
Rachel Wilkinson - Adult and Paediatric Neuromuscular Care Advisor covering Norfolk and Suffolk
Addenbrookes Hospital, Hills Road, Cambridge, CB2 0QQ.
- Email: rachel.wilkinson28@nhs.net
- Working days: Wednesdays, Thursdays, and Fridays
Lancashire: Heywood, Middleton and Rochdale
Janice Fidler – Full time Neuromuscular Care Advisor for paediatric and adult clients.
Pennine Care NHS trust, Paediatric Physiotherapy Department, Callaghan House, Cross Street, Heywood, Lancashire, OL10 2DY.
- E-mail: janice.fidler1@nhs.net
- Tel: 01706 676316
Paula Sugden - Paediatric Neuromuscular Specialist Nurse Lancashire Teaching Hospitals NHS Foundation Trust
Royal Preston Hospital, Sharoe Green Lane, Fulwood, Preston, Lancs, PR2 9HT
- Email: paula.sugden@lthtr.nhs.uk
- Tel: 01772 524465
Leicester
Yvonne Julien – Neuromuscular Care Advisor for Leicester, catering for both paediatric and adult care on a full time basis.
Leicester General Hospital, Neurology Outpatients, Gwendolen Road, Leicester LE5 4PW
- E-mail: yvonne.julien@uhl-tr.nhs.uk
- Tel: 0116 502 7125
Liverpool
Shirley Crosby - Neuromuscular Care Advisor for clients who attend Alder Hey & Walton Centre. Can provide for paediatric and adult patients on a full time basis.
- E-mail: shirley.crosby@alderhey.nhs.uk
- Tel: 0151 2525751
Alison Sutch - Neuromuscular Care Advisor for clients who attend Alder Hey & Walton Centre
- E-mail: alison.sutch@alderhey.nhs.uk
- Tel: 0151 2284811
Anna Smith - Associate Neuromuscular Nurse Specialist for clients who attend Alder Hey
Alder Hey Children’s NHS Trust, East Prescot Road, Liverpool, L12 2AP
- E-mail: anna.smith@alrderhey.nhs.uk
- Tel: 07676 209 541
Alison Brown - Neuromuscular Care Advisor for clients who attend Alder Hey & Walton Centre
- E-mail: alison.brown@alderhey.nhs.uk
- Tel: 0151 252 5451
Vicki Hargreaves - Roald Dahl Neuromuscular Nurse Specialist for clients who attend Alder Hey & Walton Centre
- Email: vicki.hargreaves@alderhey.nhs.uk
- Tel: 07966 308 957
London
Sian Craig, Victoria Crook and Natalie Smith – Paediatric Clinical Nurse Specialists at Great Ormond Street Hospital.
Shomona Begum – Paediatric Neuromuscular Nurse Specialist at Great Ormond Street Hospital.
Dubowitz Neuromuscular Service, Level 10 Old Nurses Home, Great Ormond Street Hospital for Children, Great Ormond Street, London WC1N 3JH
- E-mail: neuromuscular.cns@gosh.nhs.uk
- Tel: 02074 059200 ext. 1195
Emma Standing - Clinical Nurse Specialist Paediatric Neurology at St. Thomas’ Hospital.
Paediatric Neurosciences, 1st Floor, Staircase D, South Wing, St Thomas’ Hospital, Westminster Bridge Road, London SE1 7EH
- E-mail: emma.standing@gstt.nhs.uk
- Tel: 02071 885944
Alana Mossop - Neuromuscular Care Advisor at St Georges Hospital covering London Boroughs of Wandsworth, Merton, Sutton, Croydon, Richmond and Kingston
- Email: nervemuscle@stgeorges.nhs.uk
Manchester
Janet Johnson - Full time Specialist Practitioner for Neuromuscular Conditions, based in Royal Manchester Children’s Hospital. Caters for paediatric and young people up to the age of 18.
Royal Manchester Children's Hospital 3rd Floor, Room C3.DV.162 Oxford Rd Manchester, M13 9WL
- E-mail: Janet.Johnson@cmft.nhs.uk
- Tel: 0161 7010679
Nicola Earl – Full time Specialist Nurse for Neuromuscular Conditions, based in Royal Manchester Children’s Hospital. Caters for paediatric and young people up to the age of 18.
Royal Manchester Children’s Hospital 3rd Floor, Room C3.DV.162 Oxford Rd Manchester, M13 9WL
- E-mail: Nicola.earl@mft.nhs.uk
- Tel: 0161 7010679
Phillip Kelly - Full time Neuromuscular Specialist Nurse & Care Advisor, based at Salford Royal NHS Foundation Trust. Supports adults with neuromuscular conditions
Muscle Diseases Unit, 3rd Floor, Neurology Offices, Humphrey Booth Building, Salford Royal NHS Foundation Trust, Stott Lane, Salford, M6 8HD
- E-mail: MDU@nca.nhs.uk
- Tel: 0161 206 2010
Newcastle
Gail Eglon - Northeast Neuromuscular Genetics Nurse Specialist, based in Newcastle, covers paediatric and adult patients on a full time basis.
MRC Centre for Neuromuscular Diseases at Newcastle, Institute of Genetic Medicine, International Centre for Life, Central Parkway, Newcastle upon Tyne, NE1 3BZ
- E-mail: gail.eglon@nuth.nhs.uk
- Tel: 0191 2418864
Joe Mason - Specialist Neuromuscular Care Advisor for the North East, based in Newcastle, who covers paediatric and adult care Monday - Fridays.
The John Walton Neuromuscular Research Centre, International Centre for Life, Newcastle. NE1 3BZ
- E-mail: joseph.mason1@nhs.net
- Tel: 0191 2418761
Northern Ireland
Isobel Douglas - Regional Neuromuscular Nurse Specialist for Northern Ireland, based in Belfast. She works full time over four days (Monday to Thursday) and covers paediatric and young adult care.
Royal Belfast Hospital for Sick Children, Neurology Office, 180 Falls Road, Belfast BT12 6BE
- E-mail: isobel.douglas@belfasttrust.hscni.net
- Tel: 02896151667
Sarah Mason – Regional Neuromuscular Clinical Nurse Specialist, based in Belfast. She works full time and covers adult services.
Neurosciences Department, Level 4 Outpatients, The Royal Hospitals, 274 Grosvenor Road, Belfast, BT12 6BA
• E-mail: neuromuscularservieni@belfasttrust.hscni.net • Tel: 02895043903
Nottingham
Kirstie Spencer – Muscular Dystrophy Care Advisor for Nottingham, covering paediatric and adult care on a full time basis.
Nottingham University Hospital NHS Trust, Queen’s Medical Centre Campus, Derby Road, Nottingham NG7 2UH.
- E-mail: nuhnt.md@nhs.net
- Tel: 0115 9249924
Oxford
Heather Ryan – Regional Care Advisor based in Oxford, can cover appointments with adults only, available on Mondays, Wednesdays and Fridays.
Dept Of Clinical Neurology, Level 3, West Wing, John Radcliffe Hospital, Headley Way, Headington, Oxford OX3 9DU (covers Oxford, Bucks, Berks & Northants.
- E-mail: Heather.Ryan@ouh.nhs.uk
- Tel: 01865 234221
Rebecca Moore – Regional Care Advisor based in Oxford seeing children only
Dept Of Clinical Neurology, Level 3, West Wing, John Radcliffe Hospital, Headley Way, Headington, Oxford OX3 9DU (covers Oxford, Bucks, Berks & Northants.
- E-mail: Rebecca.moore@ouh.nhs.uk
- Tel: 01865 231999
Mary Quirke – Myasthenia Nurse Specialist also seeing Myotonic Patients.
John Radcliffe Hospital, West Wing, Level Three, John Radcliffe Hospital, Headley Way, Headington, Oxford OX3 9DU
- E-mail: Mary.quirke@ouh.nhs.uk
- Tel: 01865 240300
Preston
Kelly Parkinson - Care Advisor seeing children in Preston
Royal Preston Hospital, Sharoe Green Lane North, Fulwood, Preston, Lancashire, PR2 9HT
- E-mail: Kelly.parkinson2@LTHTR.nhs.uk
Scotland (East)
Gillian Mitchell – Neuromuscular Liaison Nurse. Covers paediatric and adult care. Available Monday to Wednesday 0800 - 1600.
Royal Hospital for Children and Young People, 50 Little France Crescent, Edinburgh Bioquarter EH16 4TJ.
- Tel: 0131 312 0611(50611)
Scotland (North)
Julie Burslem – Regional Paediatric Neuromuscular Physiotherapist and Care Advisor for the North of Scotland, based in Inverness. Working 13 hours a week.
Birnie Centre, Raigmore Hospital, Old Perth Road, Inverness, IV2 3UJ.
- E-mail: julie.burslem2@nhs.scot
- Tel: 07909 891756
Scotland (West)
Wilma Stewart - Regional Care Advisor based in Glasgow, covering paediatric and adult care in West Scotland between Tuesday and Friday.
West of Scotland Genetics Service, Level 1 Laboratory Medicine Building, Queen Elizabeth University Hospital, 1345 Govan Road, Glasgow G51 4TF
- E-mail: wilma.stewart2@nhs.net
- Tel: 01413 549204
Jen Dunne – Neuromuscular Clinical Nurse Specialist based in Glasgow, covering paediatric care in West Scotland on a full time basis.
Royal Hospital for Children, Office Block, Ground Floor, Zone 02/1, 1345 Govan Road, Glasgow, G51 4TF
- E-mail: Jennifer.Dunne@ggc.scot.nhs.uk
- Tel: 0141 4516473
Southampton
Suni Narayan – Neuromuscular Co-ordinator and Specialist Physiotherapist for adults, available 1 day a week at Southampton General Hospital.
Wessex Neurological Centre, Southampton General Hospital, Tremona Road, SO16 6YD
- E-mail: sunitha.narayan@uhs.nhs.uk
Alice Wilson - Neuromuscular Co-ordinator and Specialist Physiotherapist for adults, based at Southampton General Hospital.
Wessex Neurological Centre, Southampton General Hospital, Tremona Road, SO16 6YD
- E-mail: Alice.Wilson@uhs.nhs.uk
- Tel: 02381 208691
Shona Mackie - Paediatric Neurology Nurse Specialist, available on Tuesdays, Wednesdays and Thursdays and Southampton General Hospital.
Southampton General Hospital, Tremona Road, Southampton SO166YD
- E-mail: Shona.Mackie@uhs.nhs.uk
- Tel: 02380 777222 ext 3422
Sabrina Bushell - Paediatric Neuromuscular Nurse Specialist available on Tuesdays, Wednesdays, and Thursdays (08:00-16:00).
Southampton General Hospital, G4 Surgery, Research Office, Level G, SO16 6YD
- E-mail: Sabrina.Bushell@uhs.nhs.uk
- Tel: 02381208392
South West
Elaine Burrows – Paediatric and Adult Neuromuscular Advisor, working Monday – Friday. Covers Bristol, Bath, Somerset, N.East Somerset, N. Somerset, Wiltshire, Swindon, S. Gloucestershire and Gloucestershire.
Room 7, Gate 18 Level 1, Brunel Building, Southmead Hospital Bristol, Southmead Road, Westbury-on-Trym, Bristol, BS10 5NP
- E-mail: swneuromuscularodn@nbt.nhs.uk
- Tel: 0117 4141184/85
Ann Morgan – Paediatric and Adult Neuromuscular Advisor covering Bristol, Bath, Somerset, N.East Somerset, N. Somerset, Wiltshire, Swindon and S. Gloucestershire and Gloucestershire.
Room 7, Gate 18 Level 1, Brunel Building, Southmead Hospital Bristol, Southmead Road, Westbury-on-Trym, Bristol, BS10 5NP
- E-mail: swneuromuscularodn@nbt.nhs.uk
- Tel: 0117 4141184
Clare Stayt – Paediatric and Adult Neuromuscular Advisor covering Devon.
Outpatient Department, Local Care Centre, Mount Gould Hospital, Plymouth, PL4 7PY
- E-mail: clarestayt@nhs.net
- Tel: 01752 432912
Tamara Higgins – Paediatric and Adult Neuromuscular Care Advisor covering Cornwall.
Outpatients Department, LCC Mount Gould Hospital, 200 Mount Gould Road, Plymouth PL4 7PY
- E-mail: tamara.higgins@nhs.net
- Tel: 01752 432 911
Surrey
Pamela Appleton – Neuromuscular Care Advisor for adults and young adults of transition age in Surrey (also provides specialist advice and support to people who do not live in Surrey when they attend clinic to see their Neuromuscular Consultant at St George's Hospital).
Atkinson Morley Regional Neurosciences Centre, St George's Hospital, Tooting, London, SW17 0QT.
- E-mail: nervemuscle@stgeorges.nhs.uk
Wales
Rachel Salmon – Neuromuscular Specialist Nurse in South East Wales, working 30 hours and covering adult and paediatric services.
Neurorehabilitation Outpatient Department, University Hospital Llandough, Vale of Glamorgan, CF64 2XX
- E-mail: Rachel.salmon@wales.nhs.uk
- Tel: 07974825264
Alice Spilsbury – Adult Neuromuscular Care Advisor for South Wales, based in Swansea, available Wednesdays, Thursdays, and Fridays.
3A CAB Building, Morriston Hospital, Swansea, West Glamorgan, SA6 6NL.
- E-mail: Alice.Spilsbury@wales.nhs.uk
- Tel: 01792 545753
Veronica Roberts – Paediatric and Adult Neuromuscular Care Advisor for North Wales.
- E-mail: veronica.roberts@wales.nhs.uk
- Tel: 03000 851730
West Midlands
Alice Roe – Lead Neuromuscular Clinical Specialist for adults at University Hospital, Birmingham.
Neuromuscular Team, Queen Elizabeth Hospital, Mindelsohn Way, Edgbaston, Birmingham, B14 2GW
- Email: neuromuscularteam@uhb.nhs.uk
- Tel: 07766423798
Gurpreet Bharj – Neuromuscular Clinical Nurse Specialist for adults at University Hospital, Birmingham.
Neuromuscular Team, Queen Elizabeth Hospital, Mindelsohn Way, Edgbaston, Birmingham, B14 2GW
- Email: neuromuscularteam@uhb.nhs.uk
- Tel: 07766423798
Susan Gallagher – Specialist Practitioner for Neuromuscular Conditions based in Birmingham, covering paediatric care.
Child Development Centre, Birmingham Heartlands Hospital, Bordesley Green East, Birmingham, B9 5SS
- E-mail: susan.gallagher5@nhs.net
- Tel: 0121 424 0689
Jane O’Connor – Part time Regional Care Advisor for Transition based in Birmingham.
Child Development Centre, Birmingham Heartlands Hospital, Bordesley Green East, Birmingham, B9 5SS
- E-mail: jane.o'connor2@nhs.net
- Tel: 0121 424 0689
Kerry Jones – Neuromuscular Care Advisor at the Robert Jones Agnes Hunt NHS Trust in Oswestry. Kerry supports services for children and adults.
Muscle Team, Torch Center, Robert Jones Agnes Hunt Orthopaedic Hospital NHS Foundation Trust, Oswestry, Shropshire, SY10 7AG
- E-mail: k.jones26@nhs.net
- Tel: 01691 404333
Claire Bassie – Advanced Nurse Practitioner Neuromuscular Care for children and adults at the Robert Jones Agnes Hunt NHS Trust in Oswestry.
Muscle Team, Torch Center, Robert Jones Agnes Hunt Orthopaedic Hospital NHS Foundation Trust, Oswestry, Shropshire, SY10 7AG
- E-mail: claire.bassie@nhs.net
- Tel: 01691 404493
Yorkshire
Sue Manning – Based in Leeds, Sue is a part time Neuromuscular Care Advisor for paediatric and adult clients in East, North and West Yorkshire.
Leeds General Infirmary, Room 42, Paediatric Neurology, F Floor, Martin Wing, Leeds, LS1 3EX
Secretary: Iris Maher, 0113 3923113
- E-mail: Sue.Manning1@nhs.net
- Tel: 0113 3923113
Tracey Adjei – Full time Neuromuscular Care Advisor for adult clients, based in Hull.
Neurology Specialist Nurse Office, Wilson Building, Hull Royal Infirmary, Analaby Road, Hull HU3 2JZ
- E-mail: Tracey.adjei@hey.nhs.uk
- Tel: 01482 675721
Sian Ball – Paediatric Neuromuscular Care Advisor for Sheffield, South Yorkshire, North Derbyshire & Lincolnshire, based in Sheffield. Working days are Monday - Friday.
Sheffield Children’s NHS Foundation Trust, Ryegate Children’s Centre, Tapton Crescent Road, Sheffield, S10 5DD
- E-mail: sian.ball@nhs.net
- Tel: 0114 271 7610
- Paediatric Neuromuscular Service E-mail: sheffield.muscle@nhs.net
Pippa Jackson - Adult specialist Neuromuscular Care Advisor for South Yorkshire & Humber, based in Sheffield. Working days are Tuesday, Wednesday and Thursday's.
12 Claremont Crescent, Royal Hallamshire Hospital, Sheffield, S10 2TA
- E-mail: Pippajackson1@nhs.net
- Tel: 011427 13441