Everyone is welcome to these meetings – whether you have been coming for years or have never been before. Families, friends, carers and PAs are all welcome to join too. Joanne Ashton, a member of the North West Muscle Group, commented:
I’m glad I joined the Muscle Group. It means I’ve got all this information early on and I won’t come up against a brick wall later – I feel I’ve been pre-armed. It’s nice to know I’m not on my own and it’s good to meet other people at different stages. Every day I imagine how bad things could get, but at the Muscle Group I met young lads with Duchenne muscular dystrophy who are in wheelchairs and they’re fantastic, they’re doing so well. Everything had a real positive spin on it too, and I realised it’s not all doom and gloom.