Everyone is welcome to these meetings – whether you have been coming for years or have never been before. Families, friends, carers and PAs are all welcome to join too. Joanne Ashton, a member of the North West Muscle Group, commented:
I’m glad I joined the Muscle Group. It means I’ve got all this information early on and I won’t come up against a brick wall later – I feel I’ve been pre-armed. It’s nice to know I’m not on my own and it’s good to meet other people at different stages. Every day I imagine how bad things could get, but at the Muscle Group I met young lads with Duchenne muscular dystrophy who are in wheelchairs and they’re fantastic, they’re doing so well. Everything had a real positive spin on it too, and I realised it’s not all doom and gloom.
Meetings are currently on Zoom and jointly held with the North East Muscle Group. Sign up to attend the next meeting, or email us to find out more.