Nottingham University Hospitals NHS Trust

Contact information

0115 924 9924
Derby Road
University of Nottingham
, ,

52.9397827, -1.1929996

Nottingham University Hospitals NHS Trust provides an adult and paediatric neuromuscular service for patients across the East Midlands.

Nottingham University Hospitals NHS Trust hosts a multidisciplinary paediatric and adult neuromuscular service. The paediatric service is led by Dr Gabriel Chow, and the adult service is led by Dr Paul Maddison.

Dr Chow and Dr Maddison work closely with a team of allied health professionals who provide the multidisciplinary services available as out-patients, including long term ventilation clinics, occupational and physiotherapy advice, and specialist paediatric respiratory physiotherapy.

A specialist neuromuscular care advisor attends all relevant clinics across the specified area and provides ongoing support. There are also services available as in-patients which include assessments of; physiotherapy, SALT, Dietary and respiratory needs.

How to access the service

The service can be accessed via GP, physiotherapist, occupational therapist or consultant referral.

The team

Dr Despoina Mandelenaki 

Consultant Paediatric Neurologist

Dr Krupa Torne

Consultant Paediatric Neurologist

Dr Saam Sedehizadeh

Consultant Neurologist

Dr Saam Sedehizadeh is a consultant neurologist seeing adults with neuromuscular conditions at Queen’s Medical Centre in Nottingham. Dr Sedehizadeh leads the muscle and peripheral nerve diseases team at Nottingham and runs three clinics a month.

Sarah Williamson

Paediatric Physiotherapist 

Paula Fenty

Adult Physiotherapist

Kirstie Spencer

Nottinghamshire Muscular Dystrophy Care Advisor

Kirstie supports and provides advice to children and adults with muscle wasting conditions across Nottinghamshire. Get in touch with Kirstie by E: or T: 07812 268749 

Other key people in the team include:

  • Dr Matt Hurley, Consultant Respiratory Paediatrician 
  • Dr Milind Sovani, Respiratory Consultant
  • Nicky McNarry, Paediatric Respiratory Physiotherapist
  • Hannah Borrill, Paediatric Respiratory Physiotherapist
  • Sarah Williamson, Specialist Neuromuscular Paediatric Physiotherapist
  • Juliet Colt, Specialist Neuromuscular Respiratory Nurse
  • Serina Byers, Specialist Neuromuscular Respiratory Nurse
  • Dr Mark Fenner, Consultant Paediatrician with expertise in cardiology
  • Dr John Walsh, Adult Consultant Cardiologist



Clinics are held at Queen's Medical Centre, City Hospital Campus

  • Long term ventilation clinic
  • Muscle spinal clinics
  • Young children’s muscle clinics


Clinics are held at Queen's Medical Centre

  • Muscle/respiratory clinics with care advisor present
  • Specialist respiratory services are available as in-patient
  • Access to specialist respiratory and cardiology services as out-patients