The paediatric Neuromuscular Service provides assessment, advice and support, therapy and medical treatment to children and families affected by muscle and nerve conditions. This service is available to children and young people living in Sheffield, South Yorkshire, North Derbyshire, Lincolnshire and for youngsters with some specific neuromuscular conditions living in the Midlands. We are one of four centres commissioned nationally to provide SMA gene therapy in England.
We have close liaison with our respiratory team including ventilatory (prophylactic chest support), spinal surgical team (including prophylactic spinal support), cardiology, orthopaedics, endocrine and specialist metabolic bone team.
We have on-site specialist diagnostics services for neuromuscular conditions such as neuroradiology (including muscle imaging), neurophysiology, genetics, biochemical analysis, histopathology and a gait laboratory.
There is access to specialised neurology psychologists, occupational therapists, speech and language therapists, clinical genetics, orthotics, and palliative care.
We work closely with our health colleagues in the adult Neuromuscular Service at the Royal Hallamshire Hospital which is part of Sheffield Teaching Hospitals NHS Foundation Trust. We conduct regular transition clinics with the adult team and we hold regular joint team meetings and up-skilling/training days.
How to access the service
Referrals are made to one of the named Consultant Paediatric Neurologists specialising in neuromuscular conditions via the child’s G.P. or their local paediatrician. Once a child is under our medical care, they remain with us until transition into adult health services.
Dr Ming Ong
Consultant Paediatric Neurologist
Dr Min Ong is the lead consultant for neuromuscular conditions in Sheffield Children’s NHS Foundation Trust. She cares for patients with neurological problems both in the acute setting and also those with longer-term neurological problems. A substantial proportion of her patients have a neuromuscular condition. She has developed an expertise in spinal muscular atrophy.
Dr Tony Hart
Consultant Paediatric Neurologist
Dr Tony Hart provides neuromuscular services and has an interest in a Hereditary Spastic Paraparesis; running dedicated clinics purely for this group of neuromuscular conditions. He is known nationally for developing services in fetal and neonatal neurology, including the assessment and diagnosis of newborn babies with neuromuscular disorders.
Kay White has worked in the field of Neurological Physiotherapy for over twenty years initially with adults and for the past fifteen years with the Community Paediatric Physiotherapy Service in Sheffield and as a Specialist Paediatric Neuromuscular Physiotherapist.
Based in Sheffield but working across the wider area Kay provides specialist assessments and advice to patients and carers as well as providing support and specialist advice to physiotherapists working with children with neuromuscular conditions. Kay can be contacted at firstname.lastname@example.org
Sarah provides specialist physiotherapy assessments and advice to parents, carers and professionals and works alongside Kay White.
Sarah has worked as a Paediatric Physiotherapist in both the community and hospital settings in South Yorkshire, before joining the Sheffield neuromuscular team. Sarah can be contacted at email@example.com
Neuromuscular Care Advisor
Sian provides neuromuscular advice and support to children, young people and their families. She is a qualified occupational therapist, and has worked in adult and paediatric health care, voluntary organisations and social care. She joined Sheffield Children’s NHS Foundation Trust in 1991, and has most recently worked as an integral member of the Early Years Therapy Team working with children with neurodisabilities. Sian can be contacted at firstname.lastname@example.org
Neuromuscular Care Coordinator
Muneebah works with all members of the neuromuscular clinical team providing a comprehensive administrative service to support the multidisciplinary team. She manages the organisation of the specialist neuromuscular clinics.
An integral member of the neuromuscular team, Becky manages the secretarial and administrative support for the therapists and neuromuscular care advisor.
Multidsciplinary neuromuscular clinics are held every week in Sheffield, in addition to:
- Combined respiratory, spinal and neuromuscular clinics which are held four times a year, where our youngsters with multiple needs are reviewed by all three specialities in one clinic appointment, which operates like a ‘one stop shop’
- For our young people, Transition Clinics are held four times a year, introducing our youngsters to health colleagues in the Sheffield adult Neuromuscular Service who will be taking on their adult care
- The HSP (Hereditary Spastic Paraperesis) Clinic is held every two months and is the only national operational paediatric HSP clinic
- Therapy Clinics attended by the physiotherapist and neuromuscular care advisor regularly review our youngsters who may not require attendance from their consultant neurologist
- SMA gene therapy clinics