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NEWS and UPDATES

Our auction for London’s hottest ticket: You Me Bum Bum Train
April 16, 2025
If you know, you know. ‘You Me Bum Bum Train’ is an immersive theatrical adventure like no other. Weird, wonderful, intense and unforgettable. It’s one of London’s best-kept secrets (thanks to people signing NDAs) and has completely sold out. But here's your chance to experience what all the buzz is about.
Read Our auction for London’s hottest ticket: You Me Bum Bum Train
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Our auction for London’s hottest ticket: You Me Bum Bum Train
April 16, 2025
Read Our auction for London’s hottest ticket: You Me Bum Bum Train
Accelerating the development of treatments for congenital muscular dystrophy – our £1 million partnership with LifeArc
April 14, 2025
Read Accelerating the development of treatments for congenital muscular dystrophy – our £1 million partnership with LifeArc
New drug in development for primary mitochondrial myopathies
April 11, 2025
Read New drug in development for primary mitochondrial myopathies
New Muscle Groups dates announced
April 9, 2025
Read New Muscle Groups dates announced
We’re calling on the UK Government to tackle the challenges faced by people with muscle wasting and weakening conditions in its upcoming 10 Year Health Plan
April 8, 2025
Read We’re calling on the UK Government to tackle the challenges faced by people with muscle wasting and weakening conditions in its upcoming 10 Year Health Plan
Translarna, a treatment for Duchenne muscular dystrophy, remains available in the UK
April 7, 2025
Read Translarna, a treatment for Duchenne muscular dystrophy, remains available in the UK
Our brand NEW podcast now available
March 27, 2025
Read Our brand NEW podcast now available
Lifechanging grants for children – our new partnership with Whizz Kidz
March 25, 2025
Read Lifechanging grants for children – our new partnership with Whizz Kidz
DMD Care UK webinar for patients and families about vamorolone
March 21, 2025
Read DMD Care UK webinar for patients and families about vamorolone
Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions?
March 20, 2025
Read Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions?
Celebrating our role in the Changing Places Toilet campaign
March 19, 2025
Read Celebrating our role in the Changing Places Toilet campaign
President’s Awards celebrate outstanding achievements
March 18, 2025
Read President’s Awards celebrate outstanding achievements

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