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News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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centre winners
Recognising outstanding neuromuscular centres across the UK
We’re delighted to announce 24 neuromuscular centres across the UK are the recipients of our…
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Blog
Research Update
Research: Successful use of a self-management support programme in neuromuscular specialist centres
Understanding self-management support programmes Self-management support (SMS) is a care programme…
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News
Medical research equipment in a laboratory
New research announced to understanding liver disease in people living with X-linked myotubular myopathy
XLMTM and liver disease Over the past few years, it’s become clear that some people with XLMTM can…
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Blog
Jack, a man in a wheelchair is smiling at the camera wearing a suit and orange tie at a wedding.
Your heart-warming words of wisdom on growing up with a muscle wasting condition
This Disability History Month, we really wanted to give people an opportunity to share what they…
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News
News Update writing on an orange background
NICE publishes second draft guidance on Efgartigimod for treating generalised myasthenia gravis
In September we shared the news that NICE had published draft guidance on the use of the treatment…
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Blog
Aerial view of the houses of parliament and surrounding buildings in london.
What are the key takeaways from the Government’s Autumn Statement?
Last week, Wednesday 22 November, the Chancellor of the Exchequer Rt Hon Jeremy Hunt MP, delivered…
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Blog
Jack, a man in a wheelchair is smiling at the camera next to Lauren wearing a muscular dystrophy uk t shirt in her chair and a picture of Lauren as a child
Disability History Month: your school experiences of Physical Education  
Jack: The theme of this year’s UK Disability History Month is childhood and youth, and my colleague…
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News
A family stands in the park. A mum, dad and two young boys.
Double your Donation 2023
  Image         Why is this…
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Blog
The 2023 Impact Report. A photo on the front shows a woman hugging her son as they read a book.
Reflection on the Annual Report
Today I’m delighted to publish our 2022/2023 Impact Report. A year in which we rallied our…
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Publication
The 2023 Impact Report. A photo on the front shows a woman hugging her son as they read a book.
Impact Report 2022-2023
A year in which we have rallied our community so that everyone with a muscle-wasting and weakening…
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