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We recently posted a blog from Rob Burley, MDUK’s Director for Campaigns, Care and Support, on a…
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Muscular Dystrophy UK and SMA UK were extremely disappointed to learn earlier this week that,…
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Recent advances in SMA research have led to the exciting development of genetic therapies, such as…
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Edasalonexent was a potential treatment for preserving muscle function in patients with Duchenne…
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Marking Becker awareness week (4 – 10th October), we were joined in our BMD seminar by Professor…
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The company will soon be providing charities with more information about what this means for people…
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The National Institute for Health and Care Excellence (NICE) is shortly launching a review of the…
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The 25th International Annual Congress of the World Muscle Society (WMS) was held between 28…
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Marking mitochondrial disease Awareness Week (13 – 19 September), we were joined in our…
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NICE widens scope of its appraisal of Zolgensma
This will now be in line with the European…