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Thanks to my wheelchair accessible vehicle, I can travel far and wide, and since realising how good…
Blog
Ben: I have Limb Girdle Muscular Dystrophy, and I’m 35 years old. I studied video editing at…
Your story
When I fell pregnant with my first son, Frankie, it felt like a miracle. I’d had five miscarriages…
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Having been diagnosed with limb girdle muscular dystrophy 25 years ago, I am used to managing my…
Your story
I contacted the helpline a couple of years ago, before I worked here, about my housing situation. I…
News
The Scottish Medicines Consortium (SMC) has completed its assessment of efgartigimod alfa (Vyvgart…
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One of the largest conferences in the field of neuromuscular research the WMS Congress brings…
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This free event, at the T3 Conference Centre, Lisburn, provided practical information and support…
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Living with CMT has limited areas of my life. Some of the everyday things that people without my…
News
The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…