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Spinraza
The first treatment for spinal muscular atrophy (SMA), Spinraza is now available to…
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To mark Becker awareness week, we were joined in our BMD seminar by researcher Federica Montanaro,…
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To mark LGMD awareness day, we were joined in our LGMD seminar by researchers Volker Straub and…
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Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
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To mark Mitochondrial Awareness Week 2021 (19-25 September), we were joined in our mitochondrial…
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We were joined in our education seminar by neuromuscular care advisor Sue Manning, SENCO Michael…
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To mark World Duchenne Awareness Day 2021 on Tuesday 7 September, we were joined in our Muscles…
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In the week of World Duchenne Awareness Day 2021 we are delighted to be able to announce that the…
Blog
I am pleased to announce that the Journal for Neuromuscular Disorders has accepted for publication…
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We were delighted to be joined in our SMA seminar by SMA researchers Dr Melissa Bowerman and Sam…