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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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The questionnaire sets out 23 actions that have been developed for the implementation of the UK…
Blog
NICE has put forward key changes to the way they assess medicines and treatments, which should…
Blog
We were pleased to have so many of our Northern Ireland community attend and hearing all the…
News
At the moment, services are funded differently depending on where in England you are. Some services…
Blog
In July 2021, we published the 'Shining a Light: the impact of COVID-19 and the future of care for…
News
Spinraza   The first treatment for spinal muscular atrophy (SMA), Spinraza is now available to…
News
Joe, who lives in Johnstone with his wife Tracy and daughter Winter, has Becker muscular dystrophy…
Blog
Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
News
That’s why we’re joining a global alliance on 15 September, International Myotonic Dystrophy…
News
To mark World Duchenne Awareness Day 2021 on Tuesday 7 September, we were joined in our Muscles…