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A man in a powerchair wearing a green polo shirt sits at a laptop with a microphone. He smiles at the camera.
‘Accessible technology: staying independent and connected’
Over the past seven years as my limb girdle muscular dystrophy has progressed, I’ve become…
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Your story
Pale orange background with teal and navy text that reads "It's one of the things I find hardest about living in a wheelchair - trying to find clothes that make me feel good, fit well, are comfy and easy to get on/off... feels like I'm looking for a unicorn!" - Anonymous
Survey findings from ‘What do you wear in your wheelchair?’
Thank you to everyone who responded to the survey about accessible clothing that I carried out last…
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A man sits in a wheelchair to the left of a lake on a path. He wears a black wooly hat and scarf.
Adventure is out there: Martin's accessible outdoor spaces
Thanks to my wheelchair accessible vehicle, I can travel far and wide, and since realising how good…
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a man holding a phone taking a selfie smiling
Charcot-Marie Tooth runs in my family so I’m running the London marathon
Several of my family members have Charcot-Marie Tooth (CMT) and have had to alter their life goals…
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There’s not a scenario with a degenerative condition where you’ll turn around and say my care needs are less than they were last year, it’s never going to happen.
The Continuing Healthcare process needs to be appropriate to progressive degenerative conditions
Ben: I have Limb Girdle Muscular Dystrophy, and I’m 35 years old. I studied video editing at…
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a family of three, left to right: a man, a baby and a woman
Best friends take on Glasgow Kiltwalk Challenge for 10-month-old Miley
From birth, we noticed that the joints of Miley’s hands and feet were extremely ‘floppy’ and at…
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Your story
Vicky is stood next to Oli, with her arm round him. They are both smiling. Oli is wearing glasses and has a ventilator mask on. They're right in front of some patio doors. In the background you can see a bright, cloudy sky and a lawn.
Running the London Marathon for nephew living with muscular dystrophy
My nephew Oli was diagnosed with muscular dystrophy before his first birthday and has always been…
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Your story
A family of four sit on the sofa. From left to right; a small blonde boy, a man, a woman and a baby smile at the camera.
Being a mum is the most rewarding experience of my life
When I fell pregnant with my first son, Frankie, it felt like a miracle. I’d had five miscarriages…
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sanjeev dj
Making music and DJing with Duchenne muscular dystrophy
Living with Duchenne muscular dystrophy has its ups and downs, but for me has definitely had more…
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Your story
A man and woman stand on a walkway in a mountainous area. He uses a walking stick. They are both wrapped up warm.
Muscular dystrophy hasn’t stopped me becoming a physiotherapist
I was always a really active kid and sports was a big part of my childhood. Looking back now, I can…
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