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As you are aware, the current MAA for ataluren (Translarna) is scheduled to end in July 2021. NICE…
News
These include the first ever national Standards of Care for adults with DMD and the expansion of…
News
This was due to the results from an interim analysis of a clinical trial called SIDEROS, which led…
News
These include the first ever national Standards of Care for adults with DMD and the expansion of…
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The Wilson family spent three weeks putting all the lights up to support eight year old Will…
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Here he describes how gaming is a brilliant activity for him personally, and also comments…
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We recently posted a blog from Rob Burley, MDUK’s Director for Campaigns, Care and Support, on a…
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The schoolboy lives with Duchenne muscular dystrophy, a condition which causes his muscles to…
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“2020 has given me the chance to recharge my batteries after finishing university - but what…
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His fantastic commitment to the charity started following the diagnosis of his nephew with Duchenne…