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A better understanding the root cause behind this condition will in time lead to more targeted and…
Blog
Myotonic dystrophy is a genetic condition that causes progressive muscle weakness and wasting. It…
News
That’s why we’re joining a global alliance on 15 September, International Myotonic Dystrophy…
Your story
Three Northern Irish rugby players hope to raise £10,000 in memory of Steve's dad, David who lived…
News
On this year’s Rare Disease Day, Sunday 28 February 2021, we are showcasing the achievement of…
Your story
Adam had signed up to run this year’s Oxford Town and Gown 10k, an incredible four times in…
Press release
  A £35,000 investment into a rare genetic condition at St Andrews University will ‘bring hope’ to…
News
The 11th UK Neuromuscular Translational Research Conference was held in Cambridge on 19-20 April…
News
AMO Pharma recently presented data from its trial investigating tideglusib (AMO-02) in teenagers…