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On the day, the weigh-in was followed with a video briefing, which made it all look so easy.  Next…
Your story
West Bromwich vicar, Lisa Mitchell, was 30 when she was diagnosed with facioscapulohumeral muscular…
Blog
David Howard, who has facioscapulohumeral muscular dystrophy (FSHD), is excited to be taking on the…
Your story
Nikita, Natasha, Alisha and Alannah Ellithorn’s mum Sandra had Facioscapulohumeral muscular…
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Acceleron Pharma has announced the US Food and Drug Administration (FDA) has granted Fast Track…
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On Saturday 21 April, 180 people joined us at our information day in Cambridge to hear research…
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After the passing of her mum Sandra Nightingale in September 2017, Nikita Ellithorn decided that…
Your story
Kerry Brett, 56, from Porthcawl, has Facioscapulohumeral muscular dystrophy, which affects between…
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Kerry from Wales, who has Facioscapulohumeral muscular dystrophy, was awarded Employment and…
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Acceleron Pharmaceuticals has announced preliminary results from its phase 2 trial testing ACE-083…