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News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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A man sits in a wheelchair to the left of a lake on a path. He wears a black wooly hat and scarf.
Adventure is out there: Martin's accessible outdoor spaces
Thanks to my wheelchair accessible vehicle, I can travel far and wide, and since realising how good…
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Blog
There’s not a scenario with a degenerative condition where you’ll turn around and say my care needs are less than they were last year, it’s never going to happen.
The Continuing Healthcare process needs to be appropriate to progressive degenerative conditions
Ben: I have Limb Girdle Muscular Dystrophy, and I’m 35 years old. I studied video editing at…
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Your story
A family of four sit on the sofa. From left to right; a small blonde boy, a man, a woman and a baby smile at the camera.
Being a mum is the most rewarding experience of my life
When I fell pregnant with my first son, Frankie, it felt like a miracle. I’d had five miscarriages…
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Blog
Louise hallying
Supporting our community’s mental health with Louise Halling
Having been diagnosed with limb girdle muscular dystrophy 25 years ago, I am used to managing my…
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Your story
Lauren sits in her powerchair in a field. She faces the camera head on. She wears an orange Muscular Dystrophy UK t-shirt.
Our helpline is here for you
I contacted the helpline a couple of years ago, before I worked here, about my housing situation. I…
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News
"News update" in lime green text on a bright orange background.
Myasthenia gravis treatment Efgartigimod not recommended for use in Scotland
The Scottish Medicines Consortium (SMC) has completed its assessment of efgartigimod alfa (Vyvgart…
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Blog
Conference in South Carolina, USA.
Update on the 28th annual World Muscle Society 2023 Congress
One of the largest conferences in the field of neuromuscular research the WMS Congress brings…
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Blog
A woman in a wheelchair sits with a mug of tea. She talks to another woman whose back is to the camera.
Northern Ireland Information Day – connecting our community
This free event, at the T3 Conference Centre, Lisburn, provided practical information and support…
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Blog
Jamie's Story
“The help from Muscular Dystrophy UK has ensured I can live day to day” – Jamie’s helpline story
Living with CMT has limited areas of my life. Some of the everyday things that people without my…
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News
Breaking News
NICE publishes draft guidance on ravulizumab for treating generalised myasthenia gravis
The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…
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