Advanced filters
News
To mark LGMD awareness day, we were joined in our LGMD seminar by researchers Volker Straub and…
Blog
Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
News
To mark Mitochondrial Awareness Week 2021 (19-25 September), we were joined in our mitochondrial…
News
We were joined in our education seminar by neuromuscular care advisor Sue Manning, SENCO Michael…
News
To mark World Duchenne Awareness Day 2021 on Tuesday 7 September, we were joined in our Muscles…
News
In the week of World Duchenne Awareness Day 2021 we are delighted to be able to announce that the…
Blog
I am pleased to announce that the Journal for Neuromuscular Disorders has accepted for publication…
News
We were delighted to be joined in our SMA seminar by SMA researchers Dr Melissa Bowerman and Sam…
News
We were joined by care advisor Jane O’Connor and recent graduates Freya Masters and Hayleigh…
Blog
We heard concerns arising because of the pandemic, such as continued delays to accessing critical…