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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Kilimanjaro mountain
Taking on Mount Kilimanjaro in grandma’s memory
I grew up seeing the affect muscular dystrophy had on my grandma and my whole family as she…
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News
Gabby logan stands at the front of a room of people. The screen behind reads "President's Awards. Recognising remarkable people"
Our President’s Awards
The ceremony hosted by our President, Gabby Logan MBE, took place on Monday 19 February, at the…
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Blog
John Foxwell, a man with Pompe disease, stands in front of his house.
Turning a diagnosis into a purpose: John Foxwell
All through life I struggled with everyday things and couldn’t understand why. I couldn’t do sit…
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Blog
A photo of Professor Linda Popplewell, a research scientist who works on Muscular Dystrophy and rare diseases.
Recognising scientist Linda Popplewell on International Day of Women and Girls in Science
A career in science and muscular dystrophy I’ve always had a brain for science as opposed to…
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News
News update
Government fails to act on their 2022 commitment to increase financial support through the Disabled Facilities Grant
Today the BBC have highlighted that just after announcing the Disability Action Plan, the…
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News
Dr Kate Adcock, Professor Laurent Servais, Dame Kay Davies and Professor Matthew Wood
Changing the landscape for clinical trials in the UK - celebrating the fifth anniversary of the MDUK Oxford Neuromuscular Centre
In January 2019, we partnered with the University of Oxford to form the MDUK Oxford Neuromuscular…
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Blog
Research Update
Research: Successful use of a self-management support programme in neuromuscular specialist centres
Understanding self-management support programmes Self-management support (SMS) is a care programme…
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News
Medical research equipment in a laboratory
New research announced to understanding liver disease in people living with X-linked myotubular myopathy
XLMTM and liver disease Over the past few years, it’s become clear that some people with XLMTM can…
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Blog
Jack, a man in a wheelchair is smiling at the camera wearing a suit and orange tie at a wedding.
Your heart-warming words of wisdom on growing up with a muscle wasting condition
This Disability History Month, we really wanted to give people an opportunity to share what they…
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News
News Update writing on an orange background
NICE publishes second draft guidance on Efgartigimod for treating generalised myasthenia gravis
In September we shared the news that NICE had published draft guidance on the use of the treatment…
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