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“Today has definitely been one for the memory box.”
Louisa, whose son, Archie, lives with…
Your story
A swan is gracious and tough above water, but underneath she paddles 100 miles an hour – unseen. I…
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Being diagnosed with a muscle-wasting condition often means adjusting to a new and unexpected…
News
There is a target in place for people to be assessed and wheelchairs to be delivered to them within…
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Every baby in the UK is offered some screening tests in their first six to eight weeks. As part of…
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We’re looking for parents of adults with Duchenne to be part of the focus group, which will explore…
News
People often think of a brand as a name and logo. But it's about who we are, what we do and why we…
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Skeletal muscles are the muscles we use to move our bodies. They are made up of long fibres,…
Your story
I knew I was gay since I was around fourteen, but I spent nearly twenty years hiding in plain sight…
Your story
We call having FSHD our superpower, and the positive thing about having the condition is certainly…