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News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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2 image collage of Sara - on the left, she's wearing a green dress and in front of lots of trees. On the right, it's a selfie of Sara wearing a multi-colour floral shirt
“Sometimes, having the heating on is the only way I can stop my muscles hurting – so what happens when people like me can’t afford the energy bill?”
I have rigid spine syndrome muscular dystrophy (RSMD). My condition mostly affects my back, neck,…
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Your story
Gabby Logan at the Celebrity Sports Quiz
Gabby Logan on turning 50 and her favourite memories in her five years as MDUK’s president
Back in 2018, when I met up with MDUK to talk about the charity and its origins, I was absolutely…
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Blog
Collage of the Team Orange runners in the blog (fltr) Sid, John, Caroline, Charlie, Debbie, Susanne, Gitte and Karl
Good luck to all our MDUK marathon runners going the extra mile for people living with muscle-wasting conditions
Good luck Gitte Three years ago, keen runner Gitte was diagnosed with myositis, a rare auto-immune…
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Your story
Selfie of Charlotte, Josie and their family
“I’ll just do it the Josie way!”: What it’s like living with muscular dystrophy as a five-year-old
Josie is a fun loving, artistic five-year-old who loves school, swimming, playing with her little…
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Blog
Charlie Hodgson smiling with a medal round his neck, leaning on the Aviva Premiership trophy
Retired England rugby player Charlie Hodgson tackles the London Marathon
Why are you fundraising for MDUK?   I’ve attended MDUK’s Celebrity Sports Quiz events at Lords…
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Blog
Image of Jack McLellan in a suit, smiling
”Typing up a storm – why we need better awareness of disabilities and adjustments in the workplace”
Many people would have been shocked and surprised by such a negative and inaccurate worldview being…
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Blog
“I am proud to work with MDUK in any way I can to help make a difference”
  Emma-Jayne is a dedicated caregiver to her son,…
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Blog
“I love making change and making people feel included”
  In her first year as Muscular Dystrophy UK’s (MDUK'…
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Blog
“I’m passionate about standing up for neuromuscular conditions”
  Dr. Vino, a Neurologist & Clinical Research…
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Blog
“Volunteering makes me feel less alone and helps me cope with my condition”
  Claire lives with miyoshi myopathy, a muscle-…
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