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In January 2021, the UK Government published the UK Rare Disease Framework, laying out the 4 main…
News
MDUK Chair, Prof Mike Hanna and MDUK’s Director of Research, Dr Kate Adcock spoke at the event.…
Blog
While some people living with muscle-wasting conditions tell us of the social isolation they feel,…
Blog
Having a muscle-wasting condition often means adjusting to a new and unexpected reality, and many…
News
Here at MDUK, we are celebrating the success of Oxford Town and Gown 2022, which took place this…
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The survival of people with DMD has significantly increased over recent years owing to improvements…
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With growing interest from several pharmaceutical companies around clinical trials for FSHD, FSHD…
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The Garfield Weston Foundation
Established in 1958, the Garfield Weston Foundation is a family-…
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MDUK welcomed over 80 neuromuscular physiotherapists from across the country, to come together to…
News
The Northern Ireland Rare Disease Action Plan is the second of four action plans to be published,…