The importance of these psychosocial factors has been demonstrated for other diseases but not for muscle disease. In this research proposal we will ask several UK muscle clinics to send a postal questionnaire booklet to their patients. This questionnaire will ask the patients information not only about the severity of their muscle disease, but also about their quality of life, mood, degree of optimism and coping skills. Statistical analysis of the responses will greatly improve our knowledge of the importance of psychosocial factors for the QoL of muscle disease patients.
It is hoped that this knowledge will allow us to devise psychosocial interventions that improve QoL even if we cannot treat the actual muscle disease.
Project leader: Dr Michael Rose
Location: King’s College Hospital
Duration of project: 2 years (starting January 2008)
Total Project Cost: £43,600
Official project title: A UK study of psychosocial determinants for quality of life in muscle disease
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