Today, Monday 15 June, we’re excited to announce the launch of our new Home Equipment Grant Fund.
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Over the last 14 years, Kathryn Fullerton has been a passionate fundraiser, bringing the Shetland community together to raise money for different causes. This year she’s on a mission to raise funds for us and explains why.
Zoe was diagnosed with FSHD in 2024 after having unexplained symptoms for almost 10 years. She shares her long diagnosis story.
Living with a muscle wasting condition can often mean needing access to vital specialist equipment to live safely and independently at home. Having the right equipment can be life-changing, and can make a big difference in supporting independence, comfort and safety.
Translarna, a treatment for a specific genetic type of Duchenne muscular dystrophy, has not been accepted for routine use on the NHS in Scotland. The treatment had been made available for a limited time to collect more evidence, but the additional data did not show enough benefit to justify the cost.
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This Volunteers’ Week, we’re celebrating the incredible people who give their time, energy and lived experience to support the muscle wasting community. Across our charity, volunteers help people feel less alone. They offer support after diagnosis, create welcoming spaces to connect, raise vital funds, influence research and help shape the future of our work.
Sign our petition calling for fairer benefits systems for people living with muscle wasting conditions. Help us demand changes to PIP and ADP that support independent living and dignity.
Our RHS Chelsea Flower Show garden has officially opened at Glasgow’s Hospice and named as the Malcom Family Forest Bathing Garden.