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Finally, on Friday 4 September, Danny, who managed to maintain his new weight throughout lock-down…
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Emily Bonner has completed a 21-day yoga challenge on Zoom - which she accidentally got into after…
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Chloe Smith, whose three-year-old son, Jenson, has a muscle-wasting condition, knows how difficult…
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"I was diagnosed with FSHD when I was 17 and studying for my A-Levels. It didn’t affect me that…
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Georgia, 21, has a sister who lives with limb girdle muscular dystrophy and she is already well…
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Growing up with a passion for photography, Jordan did not think university would be an option open…
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Chris Stennett, from Felixstowe in Suffolk, lives with FSHD. Here, he shares his daily routine and…
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The trials, with their energising infusions, will re-start soon but in the meantime, Luke’s mum,…
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“I experienced mild symptoms of FSHD from toddlerhood, including my facial weakness and difficulty…
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I’m Louise and I live in West Berkshire with my husband, Mark, and nine-year-old son, Jacob. We…