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Information and advice
The friendly care and support staff in our London office are here to give you free information and emotional support. They are great listeners. Even though…
When someone intervenes on your behalf, by speaking to a decision maker, they are called an advocate. At Muscular Dystrophy UK, we call the service that does…
Our peer support volunteers understand what you are going through, no matter how rare the condition. Our peer support volunteers all have a personal experience…
Duchenne Family Support Group (DFSG)
The Duchenne Family Support Group (DFSG) was set up in 1987 to provide support for families with children diagnosed with Duchenne muscular dystrophy.
Oculopharyngeal Muscular Dystrophy Support Group
Muscular Dystrophy UK has set up a new informal support group for people affected by oculopharyngeal muscular dystrophy (OPMD). Members are in touch with each…
NHS neuromuscular service
Regional neuromuscular care advisors and specialist nurses provide practical and emotional support for families affected by muscular dystrophy and related…
Changing places toilet
Changing places toilets
Many people don’t give visiting public buildings a second thought. However, some disabled people are unable to go out or take part in activities many take for…
If you’re looking for somewhere to get advice, share your experiences or just talk to other people living with a muscle-wasting condition, then TalkMD is the…