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There are currently few clinical trials being carried out for the condition, which affects about 2,…
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"I was diagnosed with FSHD when I was 17 and studying for my A-Levels. It didn’t affect me that…
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On Monday 17 August, Roche announced that the European Medicines Agency (EMA) has validated the…
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Chloe Smith, whose three-year-old son, Jenson, has a muscle-wasting condition, knows how difficult…
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The Centre is a partnership with the University of Oxford and aims to find potential new treatments…
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The treatment, which could be the third for the condition, alongside Spinraza and Zolgensma, will…
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The official Great North Run was scheduled for 13 September but has now been cancelled. However,…
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Georgia, 21, has a sister who lives with limb girdle muscular dystrophy and she is already well…
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Nineteen weeks, 131 days, 3144 hours, 188,640 minutes. Whichever way you depict these stats they…
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Saturday 1 August marked the "pause" of shielding for many families across the country. Families…