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Press release
Like many charities, we have been hit hard financially by the COVID-19 pandemic. As a result, we…
Blog
I’m sure many of you who use PAs and carers are in similar circumstances to me right now, whereby…
Blog
Not doing every day stuff is so hard but there’s not much you can do about it as everyone’s health…
Blog
Freya Levy, who lives with FSHD, discusses the serious difficulties in having to shield.
My…
Your story
Rebecca Leary, from Newcastle, was joined by daughter Evie, 8, for their version of the 2.6…
Press release
Many people living with muscle-wasting conditions are “clinically extremely vulnerable” and are…
Your story
Concetta, 56 said:
I recently completed the Cambridge Half Marathon in my commitment to raise…
News
On 6th May, SMA UK, TreatSMA and MDUK, sent this joint letter to the NICE Programme Director –…
News
We have not taken this decision lightly as we look to protect the research we are invested in as…
News
NICE, NHS England and NHS Improvement have reviewed the potential impact of COVID-19 on the…