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Press release
Spinraza – the only treatment available for people with spinal muscular atrophy – has not been…
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Today, the Scottish Medicines Consortium (SMC) has announced that is has approved the spinal…
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The 11th UK Neuromuscular Translational Research Conference was held in Cambridge on 19-20 April…
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Researchers in Scotland have found that a protein called neurochondrin may play a role in spinal…
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Spinraza is the first and only treatment for people with spinal muscular atrophy. Below is a…
Press release
Spinraza is the first and only treatment for patients with the rare inherited muscle-wasting…
Press release
Lucy Frost, 38, whose son George Tappenden (age six) has SMA Type 2, went to Parliament recently…
Press release
However, charities are warning that unless Spinraza is quickly made available, some patients…
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On Monday, we sent in our Patient Group submission to the Scottish Medicines Consortium (SMC) as…
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A potential new access scheme has been announced today which could see patients with SMA able to…