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Muscle in with Somhairle

Somhairle was always a little clumsy when walking, often falling over which seemed normal for any toddler starting to walk. As Somhairle passed his second birthday, and his unsteadiness remained, parents Gerry and Sarah noticed that he also struggled with stairs. Initial chats with GP’s suggested he would grow out of it and an early physio assessment didn’t pick up anything
Somhairle was always a little clumsy when walking, often falling over which seemed normal for any toddler starting to walk. As Somhairle passed his second birthday, and his unsteadiness remained, parents Gerry and Sarah noticed that he also struggled with stairs. Initial chats with GP’s suggested he would grow out of it and an early physio assessment didn’t pick up anything

Succeeding for Sandra

Family Fund Succeeding for Sandra was set up in September 2019 in memory of Nikita Ellithorn’s mum Sandra and in support for Nikita’s younger sister Alannah.
Family Fund Succeeding for Sandra was set up in September 2019 in memory of Nikita Ellithorn’s mum Sandra and in support for Nikita’s younger sister Alannah.

This year’s audacious plan from The MD Fighter – Rich Copson

Seated water-skiing, indoor skydiving and a mammoth zipwire are just a few of the amazing new challenges for 2019 on Rich Copson’s list of inclusive sports and activities he’s never previously attempted, with a goal of raising £5,000 for MDUK and a local Leicester-based charity.
Seated water-skiing, indoor skydiving and a mammoth zipwire are just a few of the amazing new challenges for 2019 on Rich Copson’s list of inclusive sports and activities he’s never previously attempted, with a goal of raising £5,000 for MDUK and a local Leicester-based charity.

About this article

Date Published:
4 October 2019

How a limb girdle diagnosis led to a life of adventure

2019 has been the ‘busiest year since diagnosis’ yet for Martin Hywood, 46, from Buckinghamshire who has become a leading and respected fundraiser for Muscular Dystrophy UK.
2019 has been the ‘busiest year since diagnosis’ yet for Martin Hywood, 46, from Buckinghamshire who has become a leading and respected fundraiser for Muscular Dystrophy UK.

About this article

Date Published:
4 October 2019
Heart failure is a serious and common complication of Duchenne and Becker muscular dystrophy. In this project, Dr Federica Montanaro and her team at University College London (UCL) will gain a better understanding of how dystrophin is involved in heart function. This knowledge will inform the design of improved microdystrophins that can be used for gene therapy.
Heart failure is a serious and common complication of Duchenne and Becker muscular dystrophy. In this project, Dr Federica Montanaro and her team at University College London (UCL) will gain a better understanding of how dystrophin is involved in heart function. This knowledge will inform the design of improved microdystrophins that can be used for gene therapy.
Heart failure is a serious and common complication of Duchenne and Becker muscular dystrophy. In this project, Dr Federica Montanaro and her team at University College London (UCL) will gain a better understanding of how dystrophin is involved in heart function. This knowledge will inform the design of improved microdystrophins that can be used for gene therapy.

Fantastic family fundraising

Mairi Leitch has no fewer than eight family members living with limb girdle muscular dystrophy. They are a fantastic extended family and are constantly involved in fundraising events for Muscular Dystrophy UK. Most recently, they took on the Kilt Walk.
Mairi Leitch has no fewer than eight family members living with limb girdle muscular dystrophy. They are a fantastic extended family and are constantly involved in fundraising events for Muscular Dystrophy UK. Most recently, they took on the Kilt Walk.

About this article

Date Published:
30 September 2019
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