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A Cure for George

Adam, Cerys, Freddie and George Booth live in Weston, Stafford. George aged 5 was diagnosed with Becker muscular dystrophy in January 2017. They set up A Cure for George to raise awareness and fund research into Becker muscular dystrophy.
Adam, Cerys, Freddie and George Booth live in Weston, Stafford. George aged 5 was diagnosed with Becker muscular dystrophy in January 2017. They set up A Cure for George to raise awareness and fund research into Becker muscular dystrophy.

Elliot’s Fighting Fund

Elliot lives in Kirkliston with his mum and dad, Shirley and Donald, and his older brother Rory. In March 2016 Elliot was diagnosed with Duchenne muscular dystrophy and his parents have set up Elliot’s Fighting Fund to help raise awareness and funds in support of the Duchenne Research Breakthrough Fund.
Elliot lives in Kirkliston with his mum and dad, Shirley and Donald, and his older brother Rory. In March 2016 Elliot was diagnosed with Duchenne muscular dystrophy and his parents have set up Elliot’s Fighting Fund to help raise awareness and funds in support of the Duchenne Research Breakthrough Fund.

Defeating Duchenne - Kerr's Cause

Kerr lives in Falkirk with his mum and dad Alyson and Alistair. In 2015 Kerr was diagnosed with Duchenne muscular dystrophy and his parents have set up Defeating Duchenne – Kerr’s Cause to raise money in Kerr’s name
Kerr lives in Falkirk with his mum and dad Alyson and Alistair. In 2015 Kerr was diagnosed with Duchenne muscular dystrophy and his parents have set up Defeating Duchenne – Kerr’s Cause to raise money in Kerr’s name

Thomas' Muscle Fund

Neil and Karen’s son, Thomas was diagnosed with Duchenne muscular dystrophy when he was just six months old. They set up Thomas’ Muscle Fund to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
Neil and Karen’s son, Thomas was diagnosed with Duchenne muscular dystrophy when he was just six months old. They set up Thomas’ Muscle Fund to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

The Willow Rose Fund

Willow Rose was diagnosed with congenital muscular dystrophy when she was just a few weeks old. Her mum and dad, Jaclyn and Mark, from Davyhulme in Manchester, are determined to raise as much money as possible to fund research into the condition so other parents may not have to hear the same news in the future.
Willow Rose was diagnosed with congenital muscular dystrophy when she was just a few weeks old. Her mum and dad, Jaclyn and Mark, from Davyhulme in Manchester, are determined to raise as much money as possible to fund research into the condition so other parents may not have to hear the same news in the future.

Action4Archie

Archie was diagnosed with Duchenne muscular dystrophy in 2009 and his parents, Gary and Louisa Hill from Buckinghamshire, set up Action4Archie to raise vital funds for the Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
Archie was diagnosed with Duchenne muscular dystrophy in 2009 and his parents, Gary and Louisa Hill from Buckinghamshire, set up Action4Archie to raise vital funds for the Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

Muscular Dystrophy UK's response to Changing Places funding for NHS trusts

Submitted by Anonymous (not verified) on Thu, 06/06/2019 - 00:00

Clare Lucas, Head of Policy and Campaigns for Muscular Dystrophy UK, which co-chairs the Changing Places Consortium, said:

“We welcome the government’s commitment to invest in fully accessible toilets in hospitals. Having access to a well-equipped toilet is a matter of respect and dignity for people who are severely disabled.

Muscular Dystrophy UK's response to the Government's Changing Places consultation

Submitted by Anonymous (not verified) on Thu, 06/06/2019 - 00:00

Catherine Woodhead, Chief Executive of Muscular Dystrophy UK, which co-chairs the Changing Places Consortium, said:

“People living with disabilities go to work, visit shops and enjoy days out with friends just like everyone else. But a lack of Changing Places toilets make these seemingly simple tasks a challenge. Too often, we hear stories of people not leaving their homes, having to be changed on dirty toilet floors or even having surgery because there are not enough facilities.

 

 

Muscular Dystrophy UK's response to the DfT's Inclusive Transport Strategy

Submitted by Anonymous (not verified) on Thu, 06/06/2019 - 00:00

Rob Burley, Director of Campaigns, Care and Support at Muscular Dystrophy UK, said:

“When public transport is inaccessible, it takes away the independence of people living with disabilities. We regularly hear stories about people’s terrible experiences, such as being turned away by bus drivers or missing their stop on the train because no one is around to assist. It’s not acceptable.

Muscular Dystrophy UK's response to plastic straws ban

Submitted by Anonymous (not verified) on Thu, 06/06/2019 - 00:00

Lauren West, Trailblazers Manager at Muscular Dystrophy UK, said:

“Plastic straws are sometimes the only type of straw that work for disabled people due to their flexibility and ability to be used in hot and cold drinks. While we appreciate the need to reduce the use of plastics, traditional single-use straws are essential for some disabled people.

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