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Volunteers Week: Tireless Tyrone fundraiser is awarded an MBE

Tireless Tyrone volunteer Claire O’Hanlon hasn’t stopped fundraising for Duchenne charities since her son Luke was diagnosed with the condition, aged 13 months, in 2012 and in 2019, Claire received an MBE at Buckingham Palace for her fundraising work for Muscular Dystrophy UK.
Tireless Tyrone volunteer Claire O’Hanlon hasn’t stopped fundraising for Duchenne charities since her son Luke was diagnosed with the condition, aged 13 months, in 2012 and in 2019, Claire received an MBE at Buckingham Palace for her fundraising work for Muscular Dystrophy UK.

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Date Published:
31 May 2019

Volunteers Week: Making strong friendships by volunteering for MDUK

After running the London Marathon for Muscular Dystrophy UK in 2018 Sam Tisbury, who lives in Essex, wanted to do even more for the charity. He has since supported at multiple Town and Gown events and was back last weekend supporting this year’s London Marathon runners.
After running the London Marathon for Muscular Dystrophy UK in 2018 Sam Tisbury, who lives in Essex, wanted to do even more for the charity. He has since supported at multiple Town and Gown events and was back last weekend supporting this year’s London Marathon runners.

About this article

Date Published:
31 May 2019

LoveforLouis

LoveforLouis is a Family Fund set up by Sam and Sarah Jackson for their son, Louis, who has Becker muscular dystrophy.
LoveforLouis is a Family Fund set up by Sam and Sarah Jackson for their son, Louis, who has Becker muscular dystrophy.

Alexandra’s Family Fund for FSHD

Hi, I’m and I’m fundraising for aiding the research and development into FSHD treatments and expansion of our knowledge into the condition. What is FSHD? Don’t worry I had no clue about it before my diagnosis either. Alexandra
Hi, I’m and I’m fundraising for aiding the research and development into FSHD treatments and expansion of our knowledge into the condition. What is FSHD? Don’t worry I had no clue about it before my diagnosis either. Alexandra

Cure4Carmela

Carmela is a very happy, bright and funny little girl with a zest for life but she struggles with daily obstacles. She has L-CMD, a progressive muscle-wasting condition which unfortunately will affect her heart and lungs.
Carmela is a very happy, bright and funny little girl with a zest for life but she struggles with daily obstacles. She has L-CMD, a progressive muscle-wasting condition which unfortunately will affect her heart and lungs.

Luke’s Army

We thought Luke just needed a physio. We knew he wasn’t running or climbing stairs like his brother was at his age but we certainly didn’t think anything serious was wrong. To go from that mind set to then finding out that our 4 year old had a progressive muscle wasting disease – where there is currently no cure -rocked our world. Life suddenly looked very different and it took everything we had to get up in the morning and continue being parents.
We thought Luke just needed a physio. We knew he wasn’t running or climbing stairs like his brother was at his age but we certainly didn’t think anything serious was wrong. To go from that mind set to then finding out that our 4 year old had a progressive muscle wasting disease – where there is currently no cure -rocked our world. Life suddenly looked very different and it took everything we had to get up in the morning and continue being parents.

#Team Ella

Ella who is 17 was diagnosed aged 4 as a Manifesting Carrier of Duchenne muscular dystrophy, a progressive muscle-wasting condition which currently has no cure
Ella who is 17 was diagnosed aged 4 as a Manifesting Carrier of Duchenne muscular dystrophy, a progressive muscle-wasting condition which currently has no cure

I Fight For James

James Keenan, born in 2006, lives with his parents and twin brothers in South West England in Torquay. He loves Lego, Star Wars and Manchester United. His parents, Sean and Liz, describe James as having a ‘very bright, inquisitive nature’.
James Keenan, born in 2006, lives with his parents and twin brothers in South West England in Torquay. He loves Lego, Star Wars and Manchester United. His parents, Sean and Liz, describe James as having a ‘very bright, inquisitive nature’.

Team Luca

Joanne and Pedro Fernandes’ son, Luca, has Duchenne muscular dystrophy. They set up Team Luca to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
Joanne and Pedro Fernandes’ son, Luca, has Duchenne muscular dystrophy. They set up Team Luca to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.
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